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Next Steps
Discussing and coping with serious illness

The following is an excerpt from Next Steps.  It is provided as a sample of what is included in the “How to Talk with Loved Ones” section.  More information is included in the booklet.

How to Talk with Loved Ones about Five Wishes

We want our loved ones to be healthy and happy and live forever.  No one wants to think of a family member becoming seriously ill.   That would make us feel sad, depressed and uncomfortable.

Five Wishes is a document that helps family members talk with each other about these difficult subjects and gives them the peace of mind that comes with knowing what their loved ones want, and expect from them, if they become very sick.

Before Five Wishes was developed, that discussion used to go something like this: “Mom, may I ask you something?  If you ever go into a coma, do you want a feeding tube or a respirator?  How depressing!  No wonder very few families talked about this subject.  When dying is treated like a medical event, no one wants to discuss it.

With Five Wishes, the discussion is made easier because the document shows you a series of choices you loved ones will have if they ever get seriously ill.  It gives you a “checklist” of ideas to discuss so that you can know everything that is important to them, including their personal, emotional and spiritual wishes.

Depending on how difficult it may be to raise the subject with a person, you may want to raise it indirectly first, and then bring it up later for discussion.  Or you may be able to raise the subject very directly. 

Here are some different approaches:

  •  “I was watching a TV show last night.  There was this woman on life support and her family was arguing about what to do about it.  I thought about one of us in that situation and realized I didn’t know what you would want.  What would you want?”

  • “I know you are in good health, and I hope you live to be 100.  But just in case you get sick, I would like to know a few things so I can help you if you need me.  I’m going to leave you a copy of Five Wishes and let’s talk about it after you’ve looked it over.”

How to follow up:

Be gentle but persistent. It is very normal for people to avoid this discussion, and so don’t be surprised if you don’t succeed on your first try.  That’s especially true if you have never brought up this subject with your loved one before.  But sooner or later the right opportunity will come and you’ll be glad you kept trying.  You can always change the subject and bring it up later if the discussion gets too difficult or too emotional.

An example of what you can say:

“It looks like this isn’t a good time to talk about your wishes.  Let’s talk later.”

Remember that the above is only an excerpt from Next Steps.  Much more information is contained in the document.

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